on the occasion of my 3-year anniversary – 3 years since the day this picture was taken:
i thought i’d answer a few questions that might come to a new reader of my blog and possibly even a longtime reader.
where did the name “tumorfest” come from?
“tumorfest” is the name my friend madalaine gave to the drive that she, my mom, and i took from arizona to oregon. on the first anniversary of my tumor surgery, i was in hawaii and got my phoenix tattoo. for the second anniversary, i wanted to throw a party to get folks from different parts of my recovery together. tumorfest was the logical name. the second tumorfest was this last week. august 7th.
who made that rad tumorfest logo?
the logo came to me in a dream. i drew it and emailed it to my buddy noah (son of madalaine). he does graphic design, so he whipped up the logo. the colors are from my plaid rocking chair.
you used to have a lot of migraines. do you still?
i started getting migraines in elementary school. as a young adult, they became more frequent, and before my medical drama i was having 4 or 5 a month. they almost always were on my left side, behind my eye. which is where my tumor was/is. since my surgeries, i haven’t had a single migraine, not even a headache. a silver lining.
where were you when you had your stroke?
my stroke happened after the tumor surgery, so i was conveniently already in the hospital.
how did your stroke happen?
the tumor was too large to remove completely, so dr. spetzler de-massed it. the area where it was collapsed, which pulled on structures it was attached to – that was the bleed – a hemorrhagic stroke.
what is your secret chicanes wish?
my wish is that ellen will discover this blog and have me on her show to shower me with rad canes. this wish is complicated by the fact that i have no desire to be on television.
what are you going to be studying when you start at osu in the fall?
i’m starting a master of arts in interdisciplinary studies. i’ll be integrating three fields (mine are sociology, english, and speech communications) to create my own program of study. i’ll be looking at how writing personal narrative in a group can be used to heal trauma. basically the writing part of digital storytelling.
do you still collect canes? how many do you have?
there are 14 canes in my hall tree. i inherited a few from my grandma when she died, and i’ll continue to keep a lookout for cool canes. you should, too.
now that you aren’t walking with a cane anymore, shouldn’t you change the name of this blog?
i named the blog “chicanes” because of a line from an ELO song (“can’t get it out of my head” – a little tumor humor). and i stand by my tagline – “if you have to walk with a cane, you might as well have some rad ones.” that’s just a fact.
it looks like your life is really good. should i go and have a stroke so that i can be cool like you?
yes, my life is really good. but i strongly suggest that you avoid having a stroke, if possible. pretty much everything i do is hard. but i don’t mind the hard work – “i’m just glad to be here, happy to be alive.” there has to be an easier way to have a cool life like me. to get started, i’d advise you to look for silver linings, to notice all of the things around you to be grateful for, and to put good into the universe – it comes back to you.